Thursday, June 18, 2026
Evans Family Visits
Wednesday, June 17, 2026
Robert Moments
It's late Tuesday night after a long day. Robert and James are busily packing for Youth Conference the next day. It's a big packing job: clothes, toiletries, church clothes, extra shoes, linens and bedding, a bag for the long bus rides, etc. They need things that we don't normally pack for short trips: bug spray, sunscreen, shower shoes, hat, shampoo and conditioner. They need to be responsible for things they don't usually think about: medications. Neither of them know where any of this stuff is, and we're scrambling to find viable substitutes for the things we don't have.
Robert has very particular needs/concerns for these things. His OCD is well-managed, but he's still a pretty particular guy. Shower shoes are a struggle. This option won't do at all, this option doesn't look right, this option is dirty and will take too long to clean. His bedding needs to be lightweight and compactable, no characters, no loud colors or non-traditional patterns, and definitely not that, that, or that. None of the options at-hand will do. He's frustrated. I'm frustrated. He eventually gives up on asking me for ideas. He happens upon our stash of dog blankets and says, "This is exactly the sort of thing I was looking for! Why didn't you suggest any of these blankets?!"
Um, okay.
Once the kerfuffle settles down and both guys are packed, I send James to the shower. Robert tells me that he recognizes the strain that his particular needs tend to put on me. He can tell that I'm all wound up. He tells me that it would make him feel better to explain why things happened that night the way they did, why he got so frustrated with me, and what I could do in the future to avoid so much frustration. Then he tells me that he wants to do what would make me feel better instead. He offers to massage my shoulders and work out a few knots in my back. I always have knots *sigh* and I gratefully welcome the relief.
This isn't the first time Robert has chosen my comfort over his own. He admits that he likes doing things for me that no one else can do. For example, getting out my knots. Or making those chocolate covered peanut butter discs. Or caring for Matthew in *just* the right way, remembering all the ins and outs, managing to do the bedtime routine without a triggering hitch. Or driving people somewhere when I've got to finish something at home. I really, really appreciate that. Every time.
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Something else interesting about Robert...he doesn't mind risk. As a 16-year-old, there are still a few restrictions on his license to drive. There's a curfew, for one, and a limit on the number of people under 21 that he's allowed to transport. Breaking these rules will result in a ticket for him AND for all of his underage passengers. It will also extend the length of time he will be under these restrictions. We all recognize why these restrictions are in place. We also know that they're pretty difficult to enforce unless a teenager is pulled over for some other reason first. Well, Robert is doing the math. He figures that as long as his passengers are fully aware of and compliant with the risk they're taking by breaking any of these rules with him, then he's good to go.
I find this aspect of Robert's personality fascinating. He's a rule keeper until he decides that the reasoning for the rule doesn't apply to him. He's very logical about it, too. It's a calculated risk. No hint of rash, emotional decision making. If caught, he will accept the full consequences of breaking the rule as if it were a simple transaction.
He asked me what I thought about his reasoning. I laughed. On the surface, I wanted him to follow the restrictions just because they were there. It seemed a matter of integrity, right? Deep down, I knew it was a bet worth making...he's a very responsible driver, he has money to pay the fine, and it's his own driving record at risk here. I told him that.
We'll have to see what he decides to do in practice.
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After Youth Conference, a few of the youth were asked to share a brief testimony about their experience in church. Robert was one of them. He confessed that the church history facts and names all started to blur together after the sixth house tour, but he was touched by the realization that the gospel is a community. They had to rely on each other back then, and we rely on each other now. He felt connected to all the youth and leaders in a new way.
I found that interesting. Robert is the only member of the church in his entire high school. Youth Conference and FSY must feel like a foreign country to him. I'm grateful he came away with a greater sense of connection.
James Moments
Summer has given me a lot more time with James. He's my buddy. He's always up for running errands, working on bikes, or puttering in the garden. He's got several projects going this year:
Giant pumpkins! He's got 31 pumpkin plants growing on various parts of our property. One third of them are the Atlantic Giant variety, and two thirds came from a 40-pound pumpkin we purchased from Negangard Pumpkin Patch last fall. Some of the vines are already 10 feet long. We've had several moments already where I feel better connected to James. One of his Atlantic Giants isn't doing so well. He considers them his children, so he was pretty sad about it. We had a moment where we could chat about disappointment being a normal part of growing crops...growing problems, insect damage, disease...but farmers plan for that by planting extra. Resilience is part of the game. He felt significantly better after that. James is also growing a purple variety of broccoli, which gave him his first harvest yesterday. We've been incredibly lucky so far with our brassicas.
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| Mmmmm, purple broccoli. Will he actually eat any of it? |
Schwinn Stingray Chopper Bike. There's a non-profit, co-op bike shop in Urbana called The Bike Project. I go there sometimes to buy used parts, and I've persuaded them to donate a few dozen bikes to Salt and Light over the years. Anyway, it's a shop where you can work on your own bike, or get help refurbishing one of theirs. If you do the work and pay for the parts, you get to keep the refurbished bike in the end. James has come with me a few times for parts. A couple weeks ago, he spotted a bike that he simply HAD to have. He couldn't stop thinking about it, or worrying that someone else would claim it before he could. Lucky for him, it was still available the next time we could get there. He's been fixing it up with help from me. We just *barely* finished all the repairs at closing time last night. Unfortunately, it was too late to get a final safety inspection, so he didn't get to take it home. Yet.
Emotional Regulation. James' anxiety plus puberty has made for some volatile moments. His paralytic episodes are no fun. Thanks to some advice from my parents and siblings, though, I've modified my reactions to encourage more talking on his part and more listening on my part. That's been a real help. In fact, just a couple of days ago, several things happened all at once and James instantly shut down paralyzed. He was clearly distressed, couldn't form words, and screamed whenever we asked him questions or tried to reassure him. He eventually clambored back to his room and slammed the door. Maybe 20 minutes later, he came out of his room looking completely normal. He verbalized his concern in a totally normal voice in a couple of sentences, and we were able to resolve the issue that triggered the paralysis. Done. That is progress, my friends!
Church engagement. One of James' goals this summer is to attend Sacrament Meeting in the chapel every week and/or go to the mid-week youth activities. Prior to this goal, he would attend church in the car via zoom and come in to the foyer only during the sacrament itself. He's done really well with this, and his goal has pushed him a little, but he's proud of himself. In addition, he attended our stake youth conference last week. All the youth were bussed 7 hours to Kirtland, OH, for 2 days of church history tours and spiritual activities, then bussed 7 hours back. Robert and James were pretty tired when I picked them up. On the drive home from the church, James said begrudgingly, "I did NOT enjoy that physically, socially, or emotionally, but it was a good spiritual experience. Now my testimony is stronger and I know a lot more about our church and the gospel." Later, the bishop told me how James had born his testimony at a meeting in the Kirtland temple. James, like Matthew, hasn't attended any second hour classes at church for almost a year.
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| I made him take this picture with this frog. Not sure why. We were on our road trip. This is a Panera restaurant that we stopped at for lunch. |
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| James took this picture of his favorite sibling. |
Moments with Matthew
- One Monday, we met up with a friend at Elevate, an indoor trampoline park. I can't describe how relieved and happy it made me feel to see him act so...normal...running around, joking, conversing back and forth. No anxiety. Not one trigger. I got to chat a little with his friend's mom about school and work and such. After two hours at the trampoline park, I needed some time to myself. Matthew, however, was animated and happy for hours. Still no anxiety.
- The very next day, we met up with another friend at the bowling alley. It was Matthew, me, Lukas, James, Matthew's friend, and his friend's mom. I haven't had that much fun in a long time. It helped a TON that both Lukas and the other mom were the type who could easily chat and get along with anyone. The other mom called herself a "golden retriever personality." I had to look that up, "Golden Retrievers are considerate, good-natured and strong team players. They’re naturally kindhearted and love helping, serving and looking for ways to come alongside others." (Source: Focus on the Family website). It doesn't hurt that these two people are also extroverted. Everyone felt at ease. The interesting, lively conversation never stopped. Matthew, again, was rejuvenated and happy. He was happy! Completely unbothered by anything.
- He's taken the goal and sub-goal really well. Sometimes, he'll even ask to go out and about unprompted. We've made trips to the library, had people over, run errands together, gone to appointments, visited goats, and taken a road trip. It's good for all of us.
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| Goofing around in the dentist's waiting room |
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| Swimming at the Stucki's pool |
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| Love the pool! |
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| Ringing Rocks County Park, Upper Black Eddy, PA |
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| Intrepid explorer |
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| Short hike to the rock field. I love these guys. |
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| Mercer Museum, Doylestown, PA. This was an interesting place. We found all the scavenger hunt stamps. |
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| Look at us! Evanses eating dinner at a Bob Evans restaurant. |
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| Fonthill Castle, Doylestown, PA. The home of an eccentric billionaire historian collector tile maker. |
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| The Virginia Theater in downtown Champaign. We came to this show with Lukas to see some kids from church perform. It was surprisingly fun. |
Wednesday, June 10, 2026
A Lesson About Matthew
Tuesday, May 19, 2026
The Next 10 Years
Grind to the end
Tuesday, April 7, 2026
This week
I've got a pain in my left foot that's been really bad the last couple of weeks. Turns out I've got a teeny bit of age-appropriate arthritis in one metatarsal, and one bone that's a little longer than ideal. The solution is a funky pad in my shoe. It's already made a HUGE difference. Sweet relief. The foot doctor made an audio recording of our visit and used AI to generate the note for my chart.
James had a great visit to the dentist. Still no cavities, but when the dentist ran James' x-rays through an AI program, it identified two "weak" spots that could eventually turn into cavities. The dentist recommended a few extra things James could add to his tooth brushing routine to slow the decay and maybe even restrengthen those spots.
Matthew had a rough weekend, but still not as bad as what used to be normal. By Monday morning, he was his "new normal" again and cracking jokes like a pro. He's full of big ideas and enthusiasm these days.
Robert had his first tennis match. Apparently, only the varsity team has scheduled matches. All the junior varsity kids just spar with whoever is free from the other team. Their matches don't count towards anything. Robert doesn't care. He had a great time and learned a lot by playing against strangers.
Bobby hid the kids' Easter candy again this year. The kids really enjoy it. None of the hiding spots were ridiculous, but it brought to light how many nooks and crannies and little spaces we ignore in our daily life. You think you've searched EVERYWHERE, but you haven't.
Our praying mantis died :( She didn't survive her final molting. Poor girl. She was about to get her wings!
Our baby chicks are growing quickly. We've moved them from James' room to the garage because they were just too messy and stinky to stay. Nova is obsessed with them. She has attempted murder on more than one occasion, and she goes ballistic if they're outside and she can't get to them. We have hopes that they will look less delicious when they're bigger, but who knows? This is a terrifically docile breed, quiet, super chill.
I've started planting my garden. I lost some young broccoli and cabbage to bunnies who found a weakness in my fencing *sigh* but I've patched things up and will plant again. James saved some seeds from his giant Halloween pumpkin last year and planted them indoors. I had no idea how well they would sprout, so we planted them all, but it looks like 95% of them survived. We have a TON of pumpkin seedlings now. More than will ever fit in my whole garden. I've told him to pick his 10 favorite seedlings to plant outdoors. No more. I also know he's devising ways to sneak in a couple dozen more. The stinker.
James and Matthew are at the end of their archery season. Matthew continues to get better and James has made SIGNIFICANT progress. Matthew still loves it, James still hates it *shrug*
I don't have much of an update from Lukas. He's been pretty busy with school. He did send me a picture of a chocolate lemon meringue pie, though, which made me gag. Thanks, Lukas.
Wednesday, April 1, 2026
Even more progress...
In the last week, Matthew has:
--seamlessly slept in his own bed every night
--attended dinner with us naturally every night
--happily read scriptures out loud during family scripture study every night
--attended church in-person, in church clothes, on a pew in the chapel, for the whole hour (his own idea)
--successfully completed one night of homework at home for the first time in 6 months
--sat on the couch to read quietly
--brushed off countless triggering comments and situations
--had only three panic episodes
--baked jam cake
--initiated several big projects
--made significant progress developing his own epic Dungeons and Dragons quest
--decided that he likes to get to school really early
Some of these miraculous changes are becoming commonplace, but I still get a catch in my throat every time he hops out of the car at school after a successful morning. This has been an enormous relief to our family. Astounding. Unbelievable.
We laugh together more.
We have more conversations of all types.
More light, more warmth, more hope. It's like spring.
Tuesday, March 24, 2026
More changes...
Monday, March 23, 2026
A little relief...
Wednesday, March 11, 2026
2025 Christmas Letter (in March)
Hello Friends and Family!
Here is a (way too long, way too late) year-end update on our family. Usual disclaimer: I love reading these sorts of things from other people, but I don’t expect everyone to feel that way. If this letter ends up in the recycle bin without being read, you won’t hurt my feelings. At all. Truly.
Bobby is still working as a software engineer at NVIDIA at a smallish facility in the University of Illinois Research Park. The work can be demanding. He tells me that artificial intelligence writes terrible code, but it sometimes saves time to let AI have a go first. Bobby cooked dinner almost every night this year. He invited the missionaries to dinner every week, and sometimes twice when there was a holiday. He accompanied James on a school trip to Boston. I can’t imagine traveling with over 40 11-14 year-olds…airports, hotels, walking around Boston itself…but they both survived.
Bobby in a few words: steady, faithful, confident
Bobby’s superpower: turning to God first when things get tough
Susan is me. I made several trips around the continental U.S. this year, inching closer to my goal of cycling 50 miles with my friend in all 50 states before she turns 50. People always ask how many states we have left (10), which states have been my favorites (North and South Dakota, New Mexico, and Arkansas), and when we are going to Hawaii (Winter 2026/27).
I refurbished almost 50 bikes in my garage this year for a local thrift store. The garden and my church service suffered a little as I just couldn’t give either of them as much time as they needed. Managing Matthew’s anxiety has been a major force in our family this year. It has been very, very difficult. Other interests and relationships have had to wait. I have, however, tried to make time for these things, and I appreciate everyone who’s been there for me in person or in spirit. Walking at the dog park with my sister has been GREAT! And I have fun doing statistics for my clan in my new favorite video game “Total Battle”
Me in a few words: flexible, a little awkward
My superpower: this year, it was resilience. And hope. Sometimes hope is a superpower.
Lukas (formerly Alice/Alex) turned 18 this year and graduated from high school. He worked all summer as a nature camp counselor, which he swears he will do until he graduates from college and moves to Germany. Just before starting college, Lukas sought testing for autism and received a diagnosis. He says it explains a lot. Lukas flexed his adult muscles by getting a few more piercings, taking on a couple of tattoos, and starting testosterone therapy to develop more masculine physical characteristics. And, while I don’t fully understand his choices, I do like to see him becoming an independent and self-directed adult. He’s a freshman at Southern Illinois University (Carbondale) majoring in German Studies and Psychology. He’s there on scholarship, which includes one year abroad in Germany or Austria. His friend group is loving and supportive, he’s got the sweetest boyfriend, and his classes are just challenging enough to keep him on his toes. His school is 3 hours away by car: the perfect distance to be home when you want to be home and to be far from home when you want to be far from home.
Lukas in a few words: bold, Gen Z to the core, edgy, colorful
Lukas’ superpower: instant and intense passion for whatever has his attention at the moment
Robert is in 10th grade this year at Urbana High School. When Lukas moved out and Matthew’s anxiety led to a much quieter household, Robert started coming out of his room more. Some people just do better with less stimulation. Robert is deliberate, introspective, and driven to improve every aspect of himself. His humor is dry and understated, clever, mildly sarcastic, and largely based on observation. More than one of his quiet, well-timed comments has made me burst out laughing uncontrollably. Even in public. I feel like he’s a totally new kid this year. Actually, he’s the kid that his teachers and church leaders always told me about, but who never made an appearance at home until now. Robert is doing well in school. He’s pushing himself in every discipline. Math is still his most intuitive subject. He’s in Pre-Calculus, and decided to study Calculus on his own and take the AP exam this May. Robert has made a lot of physical changes this year, too, growing leaner and much, much stronger due to regular workouts at the gym. He’s a pretty good driver and looks forward to getting his license in April.
Robert in a few words: smart, focused, meticulous, driven
Robert’s superpower: a patient focus and an analytical mind that causes him to quickly improve on anything he decides to work on
James started 7th grade this year. He’s carefully shaped his school image into something of a mischievous rascal. He decided this year that he was going to keep up on his assignments and earn decent grades (last year was NOT like that). And he has! Proudly. Another change we saw this year was our painfully shy and self-conscious James suddenly singing solos on stage, in costume, in front of his peers and their families! No sweat. Loved it. Hammed it up with all that rascal charm. James redesigned his bedroom this year into a perfectly normal-looking sitting room with a bedroom hidden in the closet, only accessible through a full-sized dresser that he converted into a secret entrance. He also built a hill cart from scratch out of a 55-gallon drum. He created a personal armory out of scraps of metal, wood, and assorted hardware. He experimented with model rockets. He constructed a raised garden bed. He co-managed a Summer Kid Camp at our home. He took down a tree and butchered it into firewood with a chainsaw (supervised). He spent hours a week at Art Club painting the canvases that now decorate his private sitting room.
James in a few words: rascal, a little stubborn, big ideas, a maker
James’ superpower: creative resilience and a sure-I’ll-try attitude
Matthew started 5th grade this year. It’s been a rocky year for this guy. It started with chronic, disabling anxiety that still hasn’t gotten much better despite 12 months of medication, regular therapy, and an extensive series of accommodations at home. We know these things take time (sometimes a LOT of time) but we’re hopeful there’s a less anxious balance out there for him. Fortunately for us, school is Matthew’s happy place: he has friends, he loves his teachers. His 4th grade teachers noticed some issues that eventually led to a diagnosis of dyslexia. He does NOT enjoy the extra hours of tutoring and reading/spelling therapy this requires, but he does the work. After school, Matthew is in the Dungeons and Dragons Club where he acts as the dungeon master for his group. He likes the story-telling aspects of D&D, and being the dungeon master allows him to shape the narrative and reign in unruly behavior. Matthew competed in archery this year (loved it) and started taking gymnastics (also loved it). He not-so-secretly wants to become Spider-Man.
Matthew in a few words: a pleaser, friendly, anxious, and woefully apologetic for being so anxious
Matthew’s superpower: resisting sweets. He’s just NEVER in the mood for them.
Love,
Susan
Saturday, March 7, 2026
Lukas Update
Lukas sent me this after he read the last blog post :)
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LUKAS
German: Doing great with comprehension and speaking. Grammar needs some work but whose doesn’t. Working on the last few grammatical rules before there’s basically no more.
Friday, March 6, 2026
Parent-Teacher Conferences March 2026
I'm writing this down here while it's still fresh on my mind:
JAMES
Science: participates really well, loves to tinker and think about the next step. Engaged, engaged, engaged. Great personality. Encouraged him to go to science summer camps at the U of I. When asked, they said he struggled with a few kids in the class, but he keeps his distance and is mature about it.
History: Engaged, engaged, engaged. She wishes she had more time to just sit and discuss history with him. Great questions, really thinking about the subject and its implications. Very active participant in class discussions. On written tests, he doesn't always answer in complete sentences, use correct grammar, or write as much detail as she asks for, so that hurts his overall grade.
ELA: agreement with the grammar issue, but she's seen a lot of improvement this trimester. Again, he's completely engaged and insightful every single class period. Active participant in discussions. This teacher is also with him during the lunch period. She says his usual lunch group started talking about things that he didn't want to participate in. He talked to them about it, talked to teachers about it, and ultimately decided to sit somewhere else for lunch. He wasn't the only one from that lunch group to split off. She said he handled it with incredible maturity. No drama.
French: he struggles with French grammar and doesn't always follow the written exam instructions, but he'll always work diligently on making corrections afterwards. He's an active and lively participant in class. When he reads out loud in French, she says it's like he's on stage. Lots of dramatics and artistry. She thinks he would benefit from more one-on-one instruction and taking the time to really understand the grammar.
Math: this is currently the hardest unit of the year. James struggled at first, but now he's getting it. He's incredibly responsible, engaged, and tuned in during class. He uses his time effectively, listens to the teacher's pointers, and incorporates those tips into his work.
Art, PE, Music, Dance, Drama...these teachers weren't part of the Parent-Teacher Conferences.
MATTHEW
Math: he gets the math concepts, he just needs significantly more time to complete the assignments. He's taken 3 standardized math tests this year so far. In the first two, he earned the EXACT same below-grade score: mid-4th grade. That kind of surprised his teachers because he didn't struggle with comprehension. On the most recent one from a few weeks ago, he scored mid-6th grade level. It took an extra hour to complete the exam, but she feels it's a better representation of his understanding.
ELA: standardized tests for his grade max out at mid-8th grade level, and he's been hitting that consistently for reading and comprehension. Handwriting, spelling, grammar, and punctuation are still a struggle, but his teachers have seen some improvement this trimester. His once-a-week tutoring with one of his teachers has been a great help keeping him caught up on his work in every subject. She says he doesn't need much "tutoring" per se, because he understands the tasks and follows the instructions well, but he gets a lot done with her there. When he's mostly caught up, he's less anxious, and he can do more.
Social Studies: this is more of a discussion-based subject compared to the other two. Matthew is consistently one of the most involved students in these discussions. His teacher has found Matthew's depth of empathy and compassion remarkable. Matthew said recently that social studies has become one of his favorite subjects.
Both of his teachers mentioned that Matthew's difficulties with school aren't intentional/lazy or any sort of intellectual issue. He just needs more time to do everything. He'd rather turn in an incomplete project on time than ask for a later deadline, even though he's worked on it consistently and knows exactly what's missing.
I asked about 6th grade next year...which math track would be a better fit, if they knew of any tutoring options, tips for transitioning...
We all agreed that while he was technically capable of the higher level math class, he would probably do better in the regular grade-level math that works at a slightly more relaxed pace.
His current teacher and tutor said she would be willing to continue as his tutor next year. I almost cried on the spot. There are so few things that other people can do to help Matthew directly (and therefore relieve some of the pressure/weight on me/us). This woman can help. It's just an hour of her week keeping a kid on-task, but it's an enormous relief and blessing to ALL of us. I don't think she understands how important she is to me in particular.
As for Matthew's transition to middle school, it'll be kinda rough, like with most kids, but he's got a few things working in his favor. First off, it's the same exact same school and half of his teachers will be the same ones he's already seeing for specials. Second, he already has friends and extracurricular activities he loves. Third, I know the 6th grade core teachers and they're great. Finally, he's got a big brother in middle school who has gone through this and can commiserate. He'll be alright.
Both of his teachers have noticed a change since Matthew started taking the higher dose of ADHD meds. He asks his ELA teacher clarifying questions more often. He seems to get more done in class, too. So, it's not a miracle cure, but it's progress.
I didn't get to speak with any of the "specials" teachers.
I did meet with Matthew's psychiatrist this morning. We talked about his progress and what more can be done. We tweaked his med regimen just a bit, too. I asked about addiction/dependency on these ADHD meds. He likened it to wearing glasses. Is that a dependency? He reminded me that Matthew's brain is still developing. Medication now helps him refocus his attention on positive neural pathways and practice putting aside the anxious ones. The less time he spends on the anxious ones, the weaker they will get. The more time he spends on pursuing other rewarding behaviors, the stronger those will get. Will he ever go off of the medications entirely? No clue. But that's not the goal right now.
Time.
Patience.
More time.
More patience.
I got this.












